Out to dinner last night with friends we hadn't seen in far too long, it became abundantly clear that parenting for our foursome has not been a cakewalk. My husband's and my journey has been objectively more fraught, but each of us carried the weight of the various challenges our children have, and of how we have handled--or perhaps even mishandled--them.
I was struck as well by the things I pointedly don't envy, in this case the child studying computer science at the premier institution on the West Coast, a place apparently so consumed with rivalry that in order to get into a dorm of one's choice, an essay explaining why it's the best fit for you is required. Honestly, that would have me ripping out my hair. And thinking that no snazzy degree is worth that kind of stupidity. But I digress...
Peppered with questions by my friend about a choice we're thinking to embark on vis a vis one of our kids, I was struck by how I've married the questions I've asked of the program's intake coordinator with a heaping dose of faith and hope. In other words, there are questions I haven't asked, and some I'm not sure I want to ask, because if the answers aren't bullseye satisfactory, then what? Do we walk away from this option? Do we continue to search, hoping to find the thing that I know for sure doesn't exist, viz., a program that meets all of the criteria I might hope for, perfectly, with guaranteed outcomes, a non-bankrupting fee structure, lifetime support and follow up, etc. etc?
It's funny being a parent of a certain age and looking around and realizing how the truly hard work of parenting is maybe only just beginning. A friend of long ago once shared wisdom some of her older friends had shared with her: bigger kids, bigger issues. Maybe when your kids are young you fret over sleeping habits, toileting, and the like. As you get older, you worry about sex, drugs, driving a car, and all the many dangers that confront kids as they get older and go farther out into the world. You worry about hurts that won't heal just with a bandaid and a kiss from mom. You worry about scars you cannot see, about the ways in which the complexity and cruelty of this world mark the children you love, perhaps for life. And you try, try, try to find a way forward that remedies some of that, or even reverses it where possible.
I have zero confidence that my husband and I will do everything right. Because we haven't up until now. But we have done one thing above all right, and it became clear to me when, in the office of a new psychiatrist recently, we were asked in amazement if we'd really never been to couples therapy. "No," we explained, "we haven't been." "That's incredible," came the reply, "given all you've had to deal with." "Maybe, but we've been well aware all these years that if we didn't pull together, we would surely pull apart." And maybe, in the end, that's the one thing that matters most, that the two of us are trying out hardest to help our kids have the present and the future they want and deserve. Maybe we'll help them get there, maybe we'll fail. But it won't be because we didn't pour every ounce of love we have into trying. And if that isn't enough, I'll be damned if I know what is.
5 comments:
I am a second generation of parents who survived WW2 and I hear and listen to what you say. I am not sure why you would bring up some of the examples of our country's failures. I have done this alone without a husband to share my burden with nor any family whatsoever. It is sad that you bring up families who have resorted to killing their children so as not to leave them alone abandoned and at the mercy of an America that is brutal to people on margins. I am so saddened that you refer to such hatred which is inconceivable. I am available to support you with so many resources that are here in our country if you would like.
One immediate example of a farm exactly as the one in Israel is:
https://camphillvillage.org
it is a farm in upstate New York with the exact philosophy and is non denominational.
This a struggle beyond anyone's capability to understand, however I do understand. This part of parenting is more than most people understand. I hear your pain. I hav no family to support me, being a single mom, my own sister (2nd generation) does not understand. At least you have a husband who supports you and shares your burden. I don't. I have devoted the last 8 years of my life to finding some resolution for my son. I will tell you it is never-ending and being closer than farther is much more realistic! Both you and your husband want to make decisions for your son, not someone across the oceans far away from you.
I have many options to offer as suggestions for you in this country. What state are you living in?
if you are interested, I would be of help in anyway I could. My son is currently place in a home with two other adults though this organization:
mywilo.org
The struggle is hard but you must be as strong as your dad and mom, and even more so because you have a partner.
I am going to Washington DC this February American Jewish Disability Day Feb 4'th 2020. I would be happy to meet up or correspond via email and be of help to you and your family.
Cindy Konichowski
Ckstone57@gmail.com
We visited several Special Needs Kibbutzim in Israel seeking a venue for our 26 of age daughter none were practicing a 1 to 1 Care giver/aide to Sp Needs person model. While i agree that CURRENTLY America has gone to hell in a handbasket I think no actually believe that a better alternative would be to develop a Special Needs Kibbutz here in the USA. I've been thinking about this for many years have all sorts of ideas
Wish you well thanks Julian Wendrow
Dear Julian,
It's interesting that you mention the kibbutz idea here. I've been batting that around with a number of other moms since we moved to our new home about 2 years ago, i.e., can the kibbutz model be adapted here, especially in dense urban settings. I'd love to hear about what you've been thinking, where you are geographically, and if there is anything we can share between us, or more broadly with others. Thanks for reaching out, as Cindy did, with a parent's thoughtful, understanding reply. Happy to connect via email if you'd like to share your contact info.
All best,
Nina
You might know that there are "urban Kibbutzim" in some Israeli cities Shared Living concepts are as old as the hills... I've long ruminated the notion of setting something up in Israel I'm dissuaded because the political landscape there is as crazy as USA. I don't like extremism of any ilk. Bottom line is there's no Utopian land anywhere Problems abound ubiquitously. So the ONLY "way out" in my humble opinion is to create your own "shtetel" with like minded people sharing commonality ito philosophy and goals. I'm sure you've "enjoyed" dozens of IEP's coupled with "climbing" many red tape bureaucratic mtns etc... The most favourable factor in USA is that it's huge many open avilable tracts of land that can vbe developed from scratch or existing areas modified etc .. One tihng is for certain and you KNOW this... NO-ONE in our opinion can take care of our kids better than we mainly because they just can't love devote to them as we have so the idea that you could separate your kid even if Noah's living in optimum environment in ISrael with you here NEVER gonna work so my advice is drop it unless you all make Aliyah You can email me at stillreedicalousisay@yahoo.com... Take care Shabbat Shalom Julian
Please contact me through my email stillreedicalousisay@yahoo.com.
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